Papa Coco's Recovery Journal

[sanmagic7]

dang, PC, i share your frustration w/ the medical profession.  i see a lot of us as outside the bell curve - that big curve that has 2 little tails, one on either side.  80% of people have ailments that fall inside the curve, and that's where most of the guesswork goes as well as the treatments and meds.  i do believe a lot of us have ailments that fall in those little flaps on either side - 10% on one side of 'normal', 10% on the other side.  i do believe stress has a lot to do w/ the ailments we have that hang around on those 'tails', but aren't researched by the medical profession, cuz stress isn't tangible, and docs don't like to work outside the 'bell', so to speak.  it's awful to try to get answers from them - they just do not want to go there, probably cuz of liability or something.  so, we go untreated, w/o answers, and yes, have to become our own medics.

i'm with you all the way on this.  love and hugs

[dollyvee]

My gut pain baffles them. My GI behaviors baffle them. They have these standardized tests and if the tests don't check the right boxes on their diagnostic charts, they're stumped. I know that most of what they do is told to them by medical insurance companies, so if they want to get paid at their jobs they have to do what the insurance companies tell them to do, and that's a sort of a backwards way to do business, but you know how it works.

I have been through this all for 10 years with my own health issues PC and heard it was all in my head etc etc. When  I could basically pinpoint the time I started to feel "broken," and spent a lot of my own money trying to figure it out. I went to numerous naturopaths etc until I learned about functional medicine and happened to find a good one on the first try who luckily happened to know about mold and it's impact. I don't think all of them do. Since she retired, there have been one not good, and one we'll see. What I like about them is that they actually test you for different things, and it's not a guessing game. It's just very outside what "normal" medicine tests for as it's looking for the root cause and not just alleviating symptoms. She identified my digestive issues as SIBO (and h pylori), but that it was reoccurring because of mold/mycotoxins (and my sensitive genetics to these things --well I mostly found out this part by continuing to research syymptoms). 

I actually mentioned mold as a potential cause of a lot of serious health issues to a friend of a friend a few years ago who couldnt work and had extreme paranoia. He ran with it (also found out he had lyme), and I spoke with him a few months ago and he told me I have a special place in his heart for being the first to mention it to him. My point is that his husband is a medical doctor who had no idea, didn't believe him, and now he goes to him with patients that he doesn't know what's going on with.

I had an ERMI test on the place I was living (according to it, borderline unlivable from a health point of view). I also know someone who has done the agar plate method for a mattress they bought, but have also heard it needs to be followed quite methodically in order to get a good reading.

As HO said, all the best with your health journey.

dolly